Not much going on today. We are putting pieces of the puzzle together and making a game plan...hopefully for the future...aka DISCHARGE!! :) No dropping possible discharge dates yet.
We were up at 7 with residents coming in, and are ready for a nap by 9:30 this a.m. When he went to sleep, his breathing was bad and it continues. Lots of retractions and stomach muscles helping him breath. This has been the worst episode since last Tuesday. His sats miraculously were 100% which the nurse and I thought was a miracle due to the fact that he was struggling so hard to breath.
His feedings continue, but hasn't had much of an appetite, but who would when you get continuous feedings. Dr. Thomas said this morning that we have to figure out the feeding and that hopefully once we get the reflux test back we will know if we can change to bolus or not.
Possible PT visit today so we don't have to come back next week!
Waiting for Dr. Goebel, but surgery is at 7 in the morning tomorrow. Gonna nap now because not sure I will sleep much tonight. Will update more later.
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