Bang Bang!

Andrew has started shooting sports and who else is his coach...but me!! I can count on one hand how many times I've shot a gun, although this is just BB gun, Drew is quickly learning how big of perfectionist I am! :)

I was helping him with his stances tonight and at one point he was trying to tell me how to do it and I said, no you need to do this and that and so on and so on. As he was correcting me, the instructor came around and said...actually your mom is right! I have held that over his head!

I am loving this little activity we are doing together!

Early Christmas

Driving home from Omaha this a.m./afternoon, I got to thinking about a year ago and what we were doing. A year ago...we (Chris and I) were driving back and forth from Omaha 3 days a week for vital stim therapy. We met an amazing speech therapist, as I have mentioned many times before.

A few weeks ago, after having spent part of August, all of September and most of October with pneumonitis, we revisited our pulmonologist and he asked the question: Do you think he has allergies?

I was adamant that he didn't because it wasn't like my older boys that had been diagnosed. So, we had a little discussion and we decided to test him anyway, since our deductible was met. Sure enough! He had 14 out of 15 positives and he was started on Zyrtec daily along with an inhaler twice daily and 2 inhalers as needed! Whew...that's a lot, but he takes it like a champ!

At the same time we met a new neurologist to Omaha at Boystown and immediately liked what we saw. She was so good with him and joked around and was very down to earth. She increased his seizure medication to the minimum recommended dose and WHOA! What a difference!! You can always tell he is feeling better after a dose increase because he gets wild and in to everything!

We have been doing so good and he had gotten in to a few drinks (7up and chocolate milk) without thickener and much to the moments after me holding my breath...he didn't choke, cough or sputter, so it built my confidence and I spoke with Jen and we got a swallow study lined up! I knew it was because we had his allergies under control.

Today we had our swallow study and he passed!!! Not totally. he aspirated some nectar, but he was also crying at the same time! He did well with thin too with aspirations on large boluses, but managed small boluses well. She said she was comfortable with going to nectar and VOILA! Here we are...after a year of honey thick liquids we get to slowly introduce nectar thick to him.

I wanted to cry as we walked out of the flouro room! I did end up crying when I called Jason but it was all tears of joy!

He has 2 new words that he is using repeatedly...hat and up. He also throws in Papa and ball. We celebrated his birthday last weekend and he has really enjoyed playing with his toys. I'm so excited to see what is to come with him.