Recap!

I just realized that I didn't post much since last week. I didn't finish with the whole story!

After seeing Dr. Reinhart on Wednesday of last week, we went and met Kate Collins, a physical therapist at Children's. I had spoken with one of our physical therapists here in O'Neill and she suggested that we be "eval'd" by a PT at Children's since ASAH doesn't do a lot of pediatrics.

Kate was really good with Matthew and it was even better that she had done some of her clinical rotation at ASAH so she knew how it worked. Matt was kind of shy at first, but she got him playing and worked with us, showing us how to work with him. She was then going to report off to the PTs in O'Neill so they could do the therapy here! It wasn't anything major! Just basically a playdate!

Friday the MRI was done and when we got there, Matthew was a champion! He got dressed like they asked, he let them take his vitals like he asked, the only thing he did was kept repeating...no shots! I just agreed! Technically he wasn't going to get a shot...he was getting an IV!!

We were all set and then were notified that there was an emergency and that we were behind by about an hour, which was no problem. The anesthesiologist, Dr. Druvall, ( I think) who is amazing and spoke with me and shared concerns with me. I stated I was concerned with the knees, but it had only been ordered a pelvic. She was going to talk to Dr. Kronberg and see what he said.

Twenty minutes later, I am on the phone with Dr. Kronberg. He shares that he thinks the diagnosis from Dr. Reinhart is basically bogus and then asked what labs he ran. When I said none, he states...I am ordering a uric acid, LDH and CBC right now! They waited til Matt was asleep before they drew the blood.

This put another worry in my head. I was so happy with the way the two days had gone prior, that I just wanted to cry! I just kept thinking...Why couldn't it be that simple!

They came and took Matt, did the MRI, and in the mean time I found out that all of Matthew's labs were normal! YAY! This meant to Juvenile Rheumatoid Arthritis! I was happy!

When I talked to Dr. Kronberg about the lab, Matthew had been back for awhile and we were getting ready to go home. He stated that he was happy with Matt's labs and he was even happy with his CBC that showed that Matt's allergies had been in check! YAY! I was doing something right! :)

At this point he hadn't heard anything from the MRI and stated that they would have called him by that point had something been off! I was okay with that!

One of the nurses had come in and asked Matt if he wanted some juice and crackers. He said, no...SOUP! The nurse brought him crackers and he asked...where's my soup! So the amazing nurse went and got him a bowl of chicken noodle soup! He ate it down like a champ! Then we got to go home!

Here we are...4 days post MRI and no news. I figure no news is good news, but Dr. Kronberg will be getting a call from me in the a.m.!

We've only had one night of leg pains...which Dr. Reinhart said will happen with this syndrome...so I am happy with that...and it wasn't all out crying...just kind of moans.

OH!!! Yeah, what Matthew has is a syndrome! It's called Benign Joint Hypermobility Syndrome or BJHS! Like I previously said, he is just a freak and can move his joints moreso than the most of us. It is genetic and Auntie MC had researched it more than I have! The PT will help build up the muscles around the joints to help alleviate the extra movement and therefore help alleviate the pain!

Let's hope! It's been a long year...a long 3 1/2 years to be exact! I am just happy he's healthy!

Hand Socks

I always joke around with Matthew and tell him he's weird or he's a nerd! He usually replies with...No you a nerd!

But he has hit new heights in his weird habits tonight!

For much of the day he has been walking around with socks on his hands! He took them off to eat supper and then when i said to get ready for bed...yeah...socks back on his hands. So when I asked him why he had socks on his hands and his simple reply..."Mom, my hands are cold!"

I guess that tells it all!