Matthew has 3 little hispanic girls in his class. After the first day of class he came home and was so proud of himself.
He said..."Mom, I said 'Hola' (sp?) to them."
I then asked what they said in return and he explained that they shared the same sentiment. He then went on to say that when they said good bye that the one little girl said "Dos."
Andrew without missing a beat says..."That's the number 2!"
I had to chuckle. Matt argued and of course Andrew had to win, but we got it smoothed over.
Later when talking with my sister we decided that he probably meant "Adios!"
Saturday, August 27, 2011
Set Back
So...I was so up on a high for how well we are doing. This week however, we've had a minor set back. Our seizures are back after not having any for 2 months.
Thursday, he was working with his therapist and in the midst of therapy he had an atonic seizure...the ones where he loses his tone. I just had him recoup, but I'm pretty sure that it scared the heck out of his therapist. Then shortly after therapy he had another one and he was standing up and fell and hit his head.
Since he's been very unsteady on his feet and it comes and goes. I'm sure I need to get a call in to Denver Monday, and am expecting them to up his meds, but it remains frustrating. I know he's off because he's been content to lay on the floor and play tractors. Usually he's climbing the curtains.
I guess we will see what next week brings.
Thursday, he was working with his therapist and in the midst of therapy he had an atonic seizure...the ones where he loses his tone. I just had him recoup, but I'm pretty sure that it scared the heck out of his therapist. Then shortly after therapy he had another one and he was standing up and fell and hit his head.
Since he's been very unsteady on his feet and it comes and goes. I'm sure I need to get a call in to Denver Monday, and am expecting them to up his meds, but it remains frustrating. I know he's off because he's been content to lay on the floor and play tractors. Usually he's climbing the curtains.
I guess we will see what next week brings.
Sunday, August 21, 2011
Good Things Come to Those Who Wait
We've had some more exciting things happening around the house lately.
On Aug. 6, we went to Omaha and participated in the Nebraska Epilepsy Walk with 19 members of our families. It was a tough day for this ole mom. It was emotional for me because it made it real. The last 6 months have felt like a dream, like we would wake up from it, but we are learning that our reality is different. The whole family had a great time and we hope to have more participating with us next year. It's a great family event to plan on year after year.
ANYWAY, that same weekend Chris had another little sinus infection and cold as I was getting over bronchitis. He started to drain copious amounts of green goo from his eye that was directly above the tube. So we pulled his NG and were told to put it in the other nare. It was like immediately both eyes started draining copious amounts of green goo and so after some texting with our family physician, he said to leave it out and it's as good as time as any for a trial run.
I am happy to announce that we have been tube free for 2 WEEKS!!! He is taking up to 8 ounces of honey thick liquids at a time and on Tuesday of this last week he started to drink out of a sippy cup. Now, mind you, our sippy cup has the spill proof valved removed, but at least it's not an all out mess.
His seizures seem to remain under control and Denver has called to check up on him once since we've been home and continue to be very happy with his progress. They drew one set of labs and they came back negative. Although that is good, still no answers. I'm learning to forego answers with progress!! :)
Chris starts speech on Monday and I am anxious that we will start making leaps and bounds in that category. I should be prepared for baby steps though, as that's about how quickly Matt did it.
This coming Tuesday the two big boys start school and although Andrew says he is not excited, I know he is. Matt is clueless, as always. He doesn't miss much, he just doesn't worry about it. He will go where and when I tell him to go. Andrew on the other hand needs to know what we are doing 6 months from now! They are complete opposites.
On Aug. 6, we went to Omaha and participated in the Nebraska Epilepsy Walk with 19 members of our families. It was a tough day for this ole mom. It was emotional for me because it made it real. The last 6 months have felt like a dream, like we would wake up from it, but we are learning that our reality is different. The whole family had a great time and we hope to have more participating with us next year. It's a great family event to plan on year after year.
ANYWAY, that same weekend Chris had another little sinus infection and cold as I was getting over bronchitis. He started to drain copious amounts of green goo from his eye that was directly above the tube. So we pulled his NG and were told to put it in the other nare. It was like immediately both eyes started draining copious amounts of green goo and so after some texting with our family physician, he said to leave it out and it's as good as time as any for a trial run.
I am happy to announce that we have been tube free for 2 WEEKS!!! He is taking up to 8 ounces of honey thick liquids at a time and on Tuesday of this last week he started to drink out of a sippy cup. Now, mind you, our sippy cup has the spill proof valved removed, but at least it's not an all out mess.
His seizures seem to remain under control and Denver has called to check up on him once since we've been home and continue to be very happy with his progress. They drew one set of labs and they came back negative. Although that is good, still no answers. I'm learning to forego answers with progress!! :)
Chris starts speech on Monday and I am anxious that we will start making leaps and bounds in that category. I should be prepared for baby steps though, as that's about how quickly Matt did it.
This coming Tuesday the two big boys start school and although Andrew says he is not excited, I know he is. Matt is clueless, as always. He doesn't miss much, he just doesn't worry about it. He will go where and when I tell him to go. Andrew on the other hand needs to know what we are doing 6 months from now! They are complete opposites.
Subscribe to:
Posts (Atom)